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Stories from the Margin
Mothering a child with ADHD or ASD
Lorelei Carpenter and elke emerald.
ISBN: 978-1921214-43-1 206pp
AUD $59.50 + p&p.
Dr Lorelei Carpenter has worked in the area of Special Education and Personal Counselling for more than twenty years. She currently teaches at Griffith University Gold Coast campus, Australia, in the area of Educational Counselling and Special Needs Education. Lorelei began researching the effect of ADHD on mothers in the mid 1990s as part of her doctorate studies. She is particularly interested in how society defines and treats people of difference.
Dr elke emerald teaches in communication and research at Griffith University, Gold Coast Campus, Australia. Her research examines the achievement of different social categories in routine interactions. Her previous co-authored book Schooling the Child, examines the categories 'student' and 'child' in the context of the school classroom. Her current work examines the politics of motherwork and the enactment of motherhood in different social sites. elke emerald formerly published as Helena Austin.
Proudly published by Post Pressed
Carpenter and emerald have enabled readers a rare glimpse into experiences that are erased or perhaps never represented as they cause discomfort for those who can more easily live within the boundaries of the normal. When these mothers' stories become visible, they interrupt the smooth plotlines of the dominant stories of good mothering and cause unease.
As they explore the contexts in which mothers of children with ADHD and ASD try to compose their lives, they highlight both the contradictory and complex intersection of diagnoses and treatment with ontological questions around disability and difference.... As Carpenter and emerald point out 'the problem is when different is taken to be deficit, especially when the deficit is located in the individual'.
Professor and Director of the Centre for Research Teacher Education and Development at the University of Alberta
This book is an essential resource for professionals working with mothers who have children with ADD or ASD The narrative of these mothers is powerful and provides insight into the challenges of mothering children who are 'different'. These women's stories tell of isolation, marginalisation and attempts to silence their reality; they speak of resilience, self-sufficiency and courage.
Dr Dianne Rogers
Author: Mothering and Attention Deficit Disorder: The Impact of Professional Power
(VDM Verlag Dr Muller)
ForewordChapter One: Setting the Scene
Chapter Two: Mothering and Motherhood in the Twenty-first Century
- This study: why interviews, why narrative and cautions
- Story, narrative, cultural narrative, counter narrative
- Counter Narratives
- Thematic Analysis
- Overview of the book
Chapter Three: ADHD and ASD
- The twentieth century mother
- From mothers to motherhood
- Discourses of motherhood
- The complex construct of mother
Chapter Four: Difference and Disability
- ADHD - What is it?
- What's in a name?
- Diagnosing ADHD: misdiagnosis, overdiagnosis, underdiagnosis
- What causes ADHD?
- Treatment - are drugs the answer or an easy way out?
- Multimodal Treatment
- Autistic Spectrum Disorder (ASD)
- Autistic Spectrum
- Asperger Syndrome
- What causes ASD
- ASD and Parenting
Chapter Five: Good Mother/Bad mother: failed mother or not so bad after all
- What is disability
- Mistreatment of 'disability', mistreatment of 'difference'
- What's in a word? - The language of disability
- Models of disability
- Disability in legislation
- The power of the Diagnostic and Statistic Manual (DSM)
- So what are the implications for mothers?
Chapter Six: The Experience of Motherhood
- Good mother/bad mother
- Motherhood as vocation
- Loss of mother role
- Counter-narrative mother
- Not a bad mother
Chapter Seven: Coming in from the Margins
- Silenced, Silence, Silent
- Having a voice, being heard
- Troubling and troubled
- Oppression that disables mothers
- Cultural Imperialism
- Oppression in the margins
- Looking back
- What next?